This is my first official blog about my book, on my new website. Well, it is also my first website! After my recent book was launched, it seemed fitting to set this up! Being diagnosed with dementia has been full of up and downs, and in writing my book, my hope is that the daily realities of living with younger onset dementia is helpful for others.
About my book: I remember going home to an empty house to try to digest my doctor’s news, “You have vascular dementia.” I thought to myself, I’m only 55 and I’m already a widow, the worst thing that could ever happen to me. But during my career working in Dementia Care, my co-workers and I had always felt that getting any type of dementia diagnosis would be the worst news a person could receive. Having witnessed the progression in so many people, I knew being a widow was nothing compared to what I was going to have to face. I soon discovered those past experiences would, in fact, help me forge through the coming losses.
The diagnosis itself was not the worst of it, finding no help or resources was. I had to try to figure out ‘what’s next’ on my own. I got my affairs in order, and came to terms with the fact that my career and the life I had known both were gone. I gave up my home, my car, my ability to drive, my hopes, and my dreams.
Yet a stubborn streak remained in me. I decided, ‘I’m not done yet,’ and made it my new motto. Then I set out to find help, to find my new self. My search led me to Dementia Alliance International. At DAI, I found hope and purpose; this was life-changing and life-saving. I stepped onto a path of a whole new understanding of dementia, advocating, speaking engagements, and learning that life can be beautiful, even with dementia.
You can buy a copy of my book here…