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Advocating Christine Thelker © 2020 Dementia

Robots and Dementia

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I am deeply disturbed by this whole idea. What type of society are we living in, COVID has pried the lid off of lots of issues in long-term care, but this is not nor should it be considered part of the solution.?

As a person living with Dementia who already has too little interactions with others, who spends too much time isolated, and works hard to combat that, this is a horrifying thought, and if this is the best solution that can be thought up, then I hope I die before I end up in any kind of care. Are we really willing to leave the most basic of human needs be left to machines, do you want your loved one looked after by a machine? And what happens when there is a technical glitch? This could create very dangerous to anyone in care and even more so those living with Dementia.

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Human interaction, the hugs, the laughter, the tears, the emotional elements are vital to our well being, seeing someones face light up when they see you, hearing the tone of their voice when they are talking to you, all vital to a person well being, whether you have dementia or not.

Technology has many great things it can be used for, including to help people living with Dementia stay independent longer but replacing human interactions with each others is not one of them and puts us all on a very slippery slope.

I would suggest that they look at changing long term care to being smaller, intimate type homes, more efficient to run, better for the people needing care, promote wellness, better for staff, less bureaucracy, more care, better nutrition, actual meals made in an environment that promotes all to be involved to whatever degree they can, promotes social engagement and less isolation. Each small unit can be specific to its clients, better overall care. It also encourages more family involvement.

But all the things in long term care that need to be scraped and started over are for another blog, this on is just about the talk that they are looking to use Robots in Dementia Units. People need human contact, people with Dementia can have different types of Hallucinations, some are due to the medications they are on, some is from the type of dementia, can you imagine them trying to sort out if they are hallucinating or its really a robot? And wondering whats happening to me where are the people? The implications and the very dangerous situation this sets up for people with Dementia is beyone compreshion for me. Why would we do that? I wake up often disorientated as to where I am even if I am home in my own bed, it can be quite a process until I am re orientated to my surroundings, if I woke up to a robot, it would totally add to my disorientation.

So what then, increased anxiety, likely increased agitation, so then I would likely be medicated to be calmed down from a situation that was created by others, who put me in this situation. How is that good care? How is that acceptable?

I cried so hard today, the thought that we are becoming less humane, instead of more is unbearable. I am struggling with where humanity is headed if this is thought to be acceptable and I will fight this from happening at every level I can.

Today I am devastated.

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By Chrissy's Journey

I am an advocate for people with dementia in Canada and globally, having been diagnosed with younger onset dementia myself a few years ago.

2 replies on “Robots and Dementia”

lisa’s journey life is a gift ftd is a nightmare but many diseases. we are alive and we try to thrive .i stay active and try to stay connected with society ! so we stay on our journey of life . and pray that we can survive the Journey !!!

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