Another year is well under way and for many it’s a time to start fresh and new for others they worry a out the coming times. For me it’s a time when my advocacy work ramps up. On Monday I head to Toronto for the week, I will be attending the I Nueron Conference. This is a six year commitment, I am thrilled that I have been part of it since it’s beginning. First time ever having science from different perspectives working collectively, sharing knowledge, so that we can move the needle I a more productive way. Once I am home, I have a couple days to recoup, then off to Penticton where I will be Keynote Speaker at an event at the Lakeside Resort. Along with taking on a new role as Vice President of our Strata Council, we are a self managed building, it’s a lot of work, but it also means you get to look after your investment. In between, being out doors and in Nature as much as possible.
I battle every day, various symptoms, but I refuse to let them get the better of me. Some days ypu want to let it go and just give up and in to it, but the bigger part of me still feels as I did when I was diagnosed and that is ” I’m not done yet”. To much in life that I still want to do, to feel and co tribute too. The day I decide just sitting or that I’m too old or that my illness has progressed to far is the day it will be over. I am not an ” good enough ” person, it’s all the way and that comes to living and dying too, so staying engaged, active, learning, working within the parameters of my illness, but not being afraid to push those lines, erase them if I can, find go around, whatever I can do to keep living, just existing is not anything I am interested in. If my illness causes a roadblock today, I change gears, do something I can manage and try the other again tomorrow. It can be frustrating but life isn’t easy and finding work around helps get us through the hard days.
So as we charge off into 2025, I hope the year is kind, I hope we all find our way to put kindness first.
Chrissy's Journey 