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Celebrating 5 Years of Chrissy’s Journey and heading into 8 years of Dementia

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It’s hard to believe that I have been doing my blog for 5 years already. Looking back, it started as a way to help me keep track and to be able to have record of what was happening in the moment for my doctors. At the beginning it was simply called “Through the Neuron Forest” As that transitioned it became “Chrissy’s Journey” and a way of trying to help others understand my world from my perspective not just their view, so often the two are so very different. I then started hearing from others that it was helping them in different ways, so I continued.

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I would like to thank everyone and give them a big shout out to all who I have had the pleasure of meeting or who over the years has sent me some lovely messages. It is all the people along the way that has helped provide me with a sense of purpose, filled me with hope and kept me inspired. It is all of you who inspired me to write my first book, my second is pretty close to completion …. more to come on that at a later date.

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Just this last week I have heard from three people asking me to continue to write. One whom I will say is M, who doesn’t know me expect through my blog, her words came via email at a time when in fact I was questioning whether I should continue on with my writing, her words mattered to me, just as much as she said my words matter to her. So in fact we matter to one another, without ever having met. And at the end of her lovely email she left it with quote that was so fitting and so relevant and gave me reason for great thought. ” Maybe stories don’t just make us matter to each other. maybe they’re also the only way to the infinite mattering – Author John Green”, she went on to say that my stories will continue to guide others into the future. I am deeply grateful that she reached out. One of the others “D” I have never met face to face but have formed a wonderful friendship with through our work with various dementia outlets and organizations, the other “M” I have known for a number of years and I have had the pleasure of meeting in person, and our friendship has carried on for a number of years. Both of their kindness and words also came at a critical time for me.

I have always vowed to continue to write, to be raw and real, even though sometimes it’s hard to be so vulnerable. It’s also something that I believe is very therapeutic in and of itself. I am so happy that the ability to write somehow was a gift of my dementia. I write at all kinds of times, when my brain is yelling at me to get it on paper I write. So often it has helped me as I have moved through different phases and dealt with varying symptoms. It is a gift I am so vary grateful for, but the biggest gift is you the readers of my blogs. the pieces of yourselves that you have shared with me, that many of you have allowed me into your life, I am truly honoured.

So my blogging will continue for as long as I can manage it, I have no set timetable or schedule as to when they come out, I publish as soon as I finish writing, sometimes I write every day other times its days and days in between, its all about my brain, so I don’t try to stress it by forcing it to meet a schedule that will set us both up for failure, I like that it is and will remain, original and organic. So as I wander into my 8th year since diagnosis, wondering how many years I may still fight to have and as I work on my recovery from this latest round of upsets or TIA’s I thank you all for your support.

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By WWW.Chrissy's Journey.com

I am an advocate for people with dementia in Canada and globally, having been diagnosed with younger onset dementia myself a few years ago.

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