Today I am highlighting this topic and worthwhile listen, a big thank you to Celia Foster for sharing this. Oddly enough yesterday the conversation around isolation came to the forefront and admittedly I have been and am far too isolated and had to admit and give much thought to that yesterday and last night.
It’s difficult to find an answer, especially if you also have to manage changing health conditions. About six months ago we received a letter from the government that we are no longer allowed to work or volunteer for more than 15 hours and or four consecutive months without losing our disability income, which is barely enough to live on at best. I don’t believe those in places making ridiculous policies has given any foresight into the fact that allowing someone with a disability to work as much and to what degree as they are able, not only allows them to afford to live a healthier life style, by providing extra income for better food and staples, it also saves money on the whole system, less mental health issues, less overall health challenges keeping people active and socialized is proven to have many benefits, those benefits far outweigh any negatives anyone has yet to be able to highlight for me. Many people with various disabilities have so much value they are able to contribute to their communities and to help themselves, again the more they can help themselves the less they have to rely on and take from the system. At a time when there is a shortage of workers, helping business and companies employ seniors and people with disabilities is a great way to lessen the burden on our over stressed housing and health care systems. Penalizing them, not allowing them to earn income or volunteer without fear makes sense. Yet it seems as though the people in positions of creating policies have to check in common sense and understanding at the door before they start their positions. Surely somewhere in amongst all these highly educated people someone most have enough common sense to see that they are creating these crisis with all the ridiculous policies. Most that I know want to be productive and busy to whatever degree they can to ensure their well being. It’s like living imprisoned without the walls.
I am glad to see the recognition of the need for people to be socializing but then we need the policy makers to not hinder us from doing the things that are of benefit not only to ourselves but to our communities.
I am and will continue to try to figure out how to decrease the amount of time I spend isolated, there isn’t easy answers it seems. I will continue to advocate to make changes within our very broken system, I will use my voice until I no longer have one, or until they find a way to silence that as well.
There is little to no resources for me, in addition to the fact that I must do things at times of day that are best for me and not only cognitively but know also physically. Too much stimulation with my dementia is not good, balancing the noise of the world with trying to be engaged a juggling act, limiting the number of hours and size of events as well.
Life I have decided is exhausting.