Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

And Here We Are

Thanks Emily Ong for sharing this message so relevant needed to share it here. This quote is interesting and as someone with cardiovascular disease and dementia, all one can do is manage between the two for as long as possible, until one decides to overtake the other.

I am not sure how I got to Saturday, the last day that was in my thoughts was Tuesday. I have been really really I’ll, not sure what got me, tested negative for Covid, but apparently there is some really bad bugs out there this year. One decided to sneak in and get me, sometimes no matter how careful we are we can still end up catching something.
Living alone, the increased effects of being sick on my dementia symptoms, it gets harder with each bout of illness to manage it alone, trying to stay hydrated, in between the episodes of soaking through everything including three sets of bedding one night due to fever, still trying to care for myself and my little dog, one day drifted to the next, not sure what I all missed in the last week, meetings etc. I remembered this morning I need to do a video they are waiting on, I am hoping that tomorrow I will be well enough to put it together, with the help of a lot of makeup, and hopefully enough voice to do it. There are times when just taking care of yourself is all you can manage, a little Angel named Brenda Child’s tapped on my door late yesterday and put a bag of supplies inside, I could not, let her in, I cannot and do not want to risk getting anyone sick, as this is a nasty one. I am grateful for the care package. She has access to my building so that she can check on me if she ever feels the need or desire and often I forget that. I had given her keys when I first moved in, so I am grateful that she has never forgotten. It is the fever aspect that is the most concerning, well that and my lungs being impacted, so I am monitoring myself well. It is these moments when I would give anything to have and feel the touch of my husbands hand, he was so gentle and caring, in all the outer gruffness that most people saw, he had the biggest kindest heart, and he always took such care of me when I was ill, something I will always be grateful for. But it does bring into clear focus, the challenges of living alone, of being alone, dealing with the ever changing environment of living with dementia to the added complications something like a flu bug can bring about. It is in those moments when you’re disoriented from fever, when your so weak you can barely stand that you question how long do you fight to stay independent, because it’s Saturday, I have no idea and will have to look and see if I have managed to stay on track with my meds through this. Another side effect of illness becoming more complicating with dementia. I am hoping that as I am awake, sitting in bed having my first coffee in, well days? Not sure actually,, that perhaps this is a turning day of things improving, at least I have figured out it’s Saturday. So if you live alone try to keep a supply of things to help you, Gatorade to keep electrolytes up, Tylenol for fever, ice to chop and chip for chewing to help with hydration, lemons, honey, ginger, cinnamon, oranges, soup in the pantry, don’t need yo keep a big supply but at least enough to get you through a week. I am starting to couch up a lot of stuff this morning hoping that is also a good sign , having it settle in my lungs as someone who has had pneumonia many times, it or I would likely not fair well if it decides to take that route. So my apologies if I missed, meetings, or attending things, hoping perhaps by the end of the weekend things will be much improved, but if not you will know it is not intentional it will be because I am just not well enough. So please if you live alone make sure someone can get to you, house keys should be given to someone, think ahead so that when another illness hits you can hopefully manage it. I am trying desperately to not end up on the admissions list of the local hospital. Take Good Care and I hope you all enjoy a peaceful and happy first weekend of December.

By WWW.Chrissy's

I am an advocate for people with dementia in Canada and globally, having been diagnosed with younger onset dementia myself a few years ago.

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