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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

Enraged

Last night I woke in the middle of the night, feeling angry and upset by the rallies going on at places like Kelowna General Hospital yesterday, as well as other various locations in BC. I laid in bed thinking about how I was feeling towards those that took part, in part I felt bad for them, bad for them because they have become so wrapped up in the hype and often misleading information out there. Bad for them and wondering if it was because they just are so desperate to feel they are part of something. Or are they grandstanding? I wonder how many of those people wear one coat when out doing these things and a different one at home. I wonder if any of those people would actually forgo treatment if they become ill. Are they willing to go that far for what they seemingly believe?

You see I don’t care if you have a a different opinion, that is not a problem for me, as long as it doesn’t have a negative impact on me or the people I care about. Because we are all entitled to our opinions, but none of us are entitled to create harm to others because of it.

So I have this to say to you the anti maskers: You’re behaviour and disrespect towards a medical system that is doing its best and health care workers who have been working in unimaginable stress for about 18 or 20 months know is disgusting. Your total disregard for them and what they do.

My thoughts are this: Everyone who refuses to get vaccinated has the right to do so, but then they should be willing to live in such a way that their choice does not impact the greater society. So others who are desperately waiting for surgeries that have to keep getting postponed; because too many covid patients in the hospitals, well perhaps people should be triaged differently, perhaps its time that the person waiting for surgery or treatments gets triaged first, if you end up with Covid and haven’t had your vaccine you only get treatment if no one else is in que waiting for that bed, for surgeries or treatments. It is absolutely your right to refuse, but myself and others have rights too and you are abusing others. You are causing harm to others.

I have a compromised system, I have been extremely careful, I live alone that has meant extreme isolation over this last 18 or 19 months. But I have done, for two reasons, one because it is my responsibility to do my part, and too ensure I am still standing at the end of this, and that I don’t put unnecessary burden on the medical system.

But just when I thought perhaps things were improving and I might finally be able to get out a little more, numbers go up, the hospitals fill up, and these are hospitals that I worked at. I have many friends working in these environments, the disrespect you show them is unforgivable and I wonder, would you still expect that these people should or would care to look after you if you got sick? You wear seatbelts in your car to stay safe, you drive at a speed limit to stay safe, every single day we do things to stay safe and to keep others safe, but somehow taking a vaccine that can protect you and your greater community and keep them safe has become reason to show disrespect to try to create discordances within people, and families. I wonder if at the end of it, it will have been worth it? Perhaps all those who don’t want to should have to create their own health system so that if they get sick they can look after each other without putting the strain on the system, those those waiting for surgeries and treatments for things like Cancer can actually receive their treatments. Because they and we have rights too, not just you, perhaps we should all get together and have rallies that are in complete contradiction to yours, perhaps we should make you feel the way you are making others feel. Perhaps instead of allowing you to be so thoughtless and reckless with your rights we need Rostand up and make our rights heard and understood.

I don’t care if you get vaccinated, but then stay out of the public areas, where you cause grave concern to others, because if you care little for others rights and its all about your rights then you need to go live somewhere where you can live with your rights without disrespecting the rights of others. And you absolutely should not be allowed to have your rights upheld while others are not. So you should not seek help or expect help if you become sick. Others rights should be upheld.

I am deeply saddened to see those in the health care field feeling so battered and bruised, working unimaginable numbers of hours in a day, days in a row, to be disrespected in the ways that transpired.

Perhaps you should have all traveled to the legislature and held your rally there, perhaps you should think a little more about who you are impacting to have your voices heard, and by the way most of us just shut you in disgust. I am a firm believer in using our voices for the greater good, I do not believe in using our voices to create discourse, upset where it can do no good.

For those few who work in the field who attended, I wonder are you expecting to one day return to work and have any kind of working relationship with the people you just took part in disrespecting?

As I said I don’t care yes you have the right to decide if you want a vaccine or not, but you do not have the right to step on my rights or anyone else’s. I am so disheartened, I hope and pray that the world will become a better place but the actions and behaviours I see lately have me wondering if thats possible. So I shall continue to live in isolation, I will do everything in my power to protect myself from you.

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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

Are We Going To Be Ok?

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Over this past week in conversations with a number of different people I realized there was an interesting thing happening. During those conversations the question was asked, “ are we going to be O.k., or “we’ll be o.k. Right? Like a question and statement all at once. These statements or questions if that’s what they actually were came by people who were telling me that they feel flat, despondent, uninspired. Interestingly enough these are not people living with dementia. So in my chats I discovered many people are feeling this way after 18 months of either being locked down due to covid, and if not in full lock down still having to live with many restrictions around how they navigate everyday life. Unable to do many of the things I. The same way as before the pandemic, if at all. Here of course we have had the added stress of extreme fires and smoke and unprecedented heat, further keeping people living in ways they have not been accustomed to, being restricted in ways they couldn’t have imagined.

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Listening to them I realized people are and have been losing, hope, not being able to see beyond all that they have lost, much of which may be temporary. But the impact is a sense of despair of giving up, lack of motivation. So I talked to them about how we all need a sense of purpose, a sense of hope. This is something we talk about of in our dementia circles.

In thinking about it I realized that there are so many people who are discouraged lack direction. People are needing to adapt and change, something those of us living with dementia have learnt how to do out of necessity to manage and to allow and give ourselves the chance to live our best lives. So while we have become good at it, this is something foreign to much of the population, and now they are foundering, lost, feeling like there world is unstable, unsure of the tomorrow’s. Many of them are stuck, stuck in that “I just want to do what I used to do”, phase, that “ I just want my life back phase.

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I know as most living with dementia now, this is not an easy or fun place to be. Finding your way through that, difficult, scary, and it doesn’t feel good. That is mostly because we humans are creatures of comfort and staying with what we know, so change of us is scary, it’s something we don’t want, and often we fight. However, if we are able to, as those of us living with Dementia can testify to, we are examples of how when you strip someone of all they new, all they thought was their life, you can once you learn to let go of the what was, and what you used to do and stop looking at what you can’t do and start looking to “ what could I do”, you will find new avenues of hope, new ways to having purpose. You will have to be willing to be thrust out of your comfort zones. It is not likely that life will ever go back to how it was pre pandemic of covid 19, but that doesn’t mean we are forever thrust into a world of no hope and purpose.
The shift comes in changing your thought process, it takes looking at ok, these are the restrictions I have to live in today, so what can today look like, what can I still do, what will bring me joy. Being willing to try something different

It takes courage, it takes willpower, it takes being willing to sit back and cry when you feel like it, but then getting up and getting busy. A desire to do something different to feel something different, because living with the feeling of hopelessness and despair, living without purpose just isn’t giving you what you want, it isn’t feeling the way you want to feel. People with dementia are handed a diagnosis, told to go home get there affairs in order, and ready themselves to die, when in stead they should be given the resources and help and shown that there is still hope, they still can have purpose, they can still lead a life where they feel valued. People with Dementia are not given any of those things, they have had to find their way through a complete unraveling of the life they had, they have had to figure out how to reinvent themselves, their lives, all the while living with a terminal, progressive illness. They are a shining example to the world at this time, about how to live and find purpose.
So in my chats I was talking about the possibility of finding purpose in different ways, if your purpose used to be this, then maybe your purpose will be this. It’s about finding things you like, and likely they will be things you didn’t even realize you liked, maybe it’s in something you always wanted to try but never have, maybe it’s baking artisan breads, maybe it’s gardening, maybe it’s painting, or like for me writing. Discovering I like to write lead to my blog, lead to my book “ For This I Am Grateful” being published. It gave me the ability to find a new way to try to make a difference to others. It’s also about learning to live more in the present. I look simply at today, let life unfold, instead of trying to control it all, make changes that allow you to have less stress. Most people don’t know how to unwind and exhale, most people even their holidays are are rushed super busy, jam packed with things to do, because most people don’t know how to just be. To just sit, breathing in and out, listening to the sound of your own heartbeat, listening to the sound of the wind rustling through the leaves, the sounds of the birds, or the splash of a fish jumping in the water, or even the sounds of things in your neighbourhood. We busy ourselves, and it buries pieces and parts of us that given the chance to let those emerge, we discover and rediscover a whole lot about ourselves. It’s like the old “ Humpty Dumpty Fell Off The Wall”.

People have to learn to get back up and put themselves back together again. Just like Humpty Dumpty, all the kings horses and all the Kings men, aren’t going to be able to put us back together. We won’t be able to go back to what was and how things were. Just like people living with Dementia discover while living with dementia, their diagnosis changed them, we are not who we were, yes some of who we were remains but it changes much of who we were. We grow, we adapt and most of us become someone who we really like.
We cannot expect life to resume, so in order to have and find hope and purpose we must first be willing to venture into some unknown territories. I sincerely hope that coming out of this year, 2021, which I feel has been so much more difficult and challenging for us on many fronts, that we have learnt to become kinder, more compassionate, less materialistic, that we have learnt that money should not and must not be allowed to trump all. I hope that we have learnt that if we don’t all take a more active role in looking after our world, our animals, plants, the earth, that we walk, then we will be to blame for the demise of the human race. I hope we have all learnt that we were programmed, brainwashed into believing we had to have more, do more, bigger, better, until bigger better has almost cost us everything, and for many it has cost our emotional and mental well-being, it has cost us our very health. I hope when we come out the other side of this life will be different, I hope just like those of us living with dementia have had to learn to adapt daily to our live with our illness, the world and all of you can enjoy a simple relationship with each other with the world around us. I hope we all learn to find more hope and purpose in things that are meaningful on a deeper level. Yes I am full of hope, yes I have purpose, it is a gift of my dementia. So yes I think we will be Ok, I think we will all be a little different, but we will be hopefully better than Ok.

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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

A Brighter Day

Delicate

I have had in the last couple days been able to enjoy the better air, as the winds have dispersed the smoke. Our temperatures have gone from mid to high thirties to mid twenties, making the temperature perfect. Covid has brought a lot more restrictions, so I remain mostly isolated, being very careful, so doing things in ways that I can enjoy a little of nature without the worry of trying to navigate and keep space from people. So yesterday was the perfect day to go to our neighbouring community of Armstrong and take in the Bloom Festival. Walking through the fields of Sunflowers, was so uplifting, such happy flowers. You had to get tickets to go at a certain time, so there was only one other family of three enjoying the gardens so no worries of trying to navigate around people. I took my sister in law ( Kay), we enjoyed strolling, the fresh air felt so good, it was nature, which I need and have needed so badly. It is not the way I typically enjoy nature, but all of the areas I would normally be going, but they are all burning up in the fires, so I have to adapt, my outdoor and nature time is so important to my overall well being.

This was up,lifting after the recent months, it was bright and cheerful. We enjoyed ice cream after and then went picking choke cherries along the farmers fields. Today I will make choke cherry jelly. The rain came down a summer sprinkle, while picking the choke cherries but I didn’t mind, it felt good and res fresh ingredients actually.
After I got home I gathered up Pheobe and off we went to have a walk, she is enjoying being reenergized as well by the cleaner air and cooler temperatures. The day before I took her so we could have a walk, and I could take my flip flops off and enjoy walking in the grass, so important for me to get my grounding in. It has been lacking in the last few months. We throughly enjoyed our walk and I am planning more of that each day, as we wind down the season before winter comes. One week from today I will be going on my three day trip, to another area of our province, to enjoy three days on a little rustic cabin on the edge of a lake. It’s not in a fire area, so nature, fresh air and the calming of water…blissful….so looking forward to it.
It’s amazing to me how just a couple days of feeling like you can breathe and enjoying nature in whatever way one can makes one feel like they just might make it through to the other side of all this.
I hope you enjoy some of the pictures I snapped.

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Have we learned any lessons

I’m sitting here at the beach looking down the valley at the smoke looking out at the water I probably shouldn’t be out but I am having a coffee watching the ducks bob along and I’m wondering have we really aren’t any lessons.

I’m wondering since there’s been less activity both at the shores of the water edge and on the water with less people tossing garbage polluting the waterways although sad that it’s because our forests are all burning up and we’ve lost towns and communities will this reprieve by this time next year have been enough to help our waterways.

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Will we have a learn to respect on my hands and our waters and all that nature provides us for without it we can’t survive and yet we disrespected so much and have for so long has this year been enough between Covid and it is continuous rampage to our unprecedented heat waves and our fires in another corners of the world floods and all kinds of devastation how we learn the lessonsWill we have a learn to respect on my hands and our waters and all that nature provides us for without it we can’t survive and yet we disrespected so much and have for so long has this year been enough between Covid and it is continuous rampage to our unprecedented heat waves and our fires in another corners of the world floods and all kinds of devastation have we learnt the lessons.

It weighs on me more than most people can begin to understand my connection to it sometimes I don’t even understand but I know I have always been very connected to it I have always had a great deal of respect for it for our forest for a rivers or streams and it’s been very hard this year to see what’s happening to it all and I just don’t know if enough have learnt what they needed too.

Its much the same with the advocating at work with dementia and around dementia it bothers me greatly that for 30+ years people have been advocating and were still talking about the same things, as all those before us, the typical, stigma, language, lack of resources, and the list goes on should advocacy not have moved on to different things by now. Oh yes there is the evolving pieces being advocated for like rehabilitation, better pre and post diagnostic supports, human rights, and more, but why has the messages not been heard, acted on, why is it so hard to get actionable and tangible progress made. It feels like it mostly comes down to it being controlled by the big players and it’s all about money. And just like our basic society and the mess it’s in money and power seem to control if and when the right things will or can be done.
I don’t generally talk politics or religion, but there is so much political unrest in the world as well, again driven by money and power, and even right here at home a Federal Election just weeks away, I have heard people saying they don’t like either leaders of our two main stay parties, so typically we go back and forth electing one then the other, for decades know people unhappy, well I am going to think outside the box and I hope others do as well, this time I’m voting for the third of four parties, I’m going to think and go outside my comfort zone. I think about the saying, and I just heard it again the other night about advocacy work, but it applies here too, and that is “ if nothing changes, nothing changes, or if you keep doing the same thing and keep getting the same results at some point you have to do something different. In this case if we keep going back and forth between the same two parties then we will get the same things, so opting for leaving the comfort zone, voting for a party we’ve never given a chance too, the other two parties have made such a mess of this country over the last number of decades, that putting someone totally different in might shake the others to go back to the drawing board. Voting someone else in at this point in my opinion couldn’t give us any worse, in the short term anyways.

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My mother used to tell me when I was growing up that I was born in the wrong era but I should’ve been born in a different time than I have was in living in a different time than I am and the longer I spend time in this world the more I believe she was right.

It’s quite likely why so much of the time I feel like I don’t fit in because truly I did belong in another time but I’m here and I try to walked along as best I can although that becomes more of a challenge all the time.

I feel and think so deeply and with so such emotion and I see things in different ways than other people and I can’t and don’t understand why that is except it maybe that’s a gift that was given to me, and maybe I shouldn’t question it. I do know that this point in time and with everything sitting so precariously I keep saying that it’s like the whole world is operating on some kind of tilt like it all earth itself shifted on its axis.

Things will be different going forward that I know for sure will they be better I don’t know I only have to believe that they will, too believe that somehow the people on this earth have finally learned that they were given a gift in all the other earth provides us and that if they don’t take care of it they will be the cause of the human extinction, we will cause our own destruction we will cease to exist only because of our own doings we will become our own undoing. So things will be different, better or worse maybe things will ride out being this way for a while. Exactly as we’re living now mostly in isolation also having to distance from others having to spend time and quiet contemplation maybe all these things are meant to have us stay this way until people do get the message until the lessons are learned but whatever and however I just know things will be different in the coming time not this year I don’t think. I’m just riding this year out. I just know things will be different in the coming time not this year I don’t think so I’m just riding this year out. I think things will also be very different for me personally going forward in the coming time and I don’t know if it’s better or worse either, but I do know it will be different . I don’t know what the path is it’s going to be laid out before me but I know there’s going to be a path very different than the one I have currently been on I just have to embrace it and I to trust that as much as I belong in a different era and as much as I was born at the wrong time in the wrong place that I will end up being exactly where I meant to be and maybe there’s a reason why I was born and was placed in this era at this time and maybe this next path will reveal a lot more. I have complete trust in God or the universe or the spirits or the angels or whatever you prefer to call it and I am going to be on the path that I meant to be on I just have to be patient and sit back and wait and it will all be revealed in its time right now it’s just a time of quiet time for me and I’ll just try to make the most of that quiet time.

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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

Emotionally Done

This morning it’s raining, something to celebrate, hopefully it will rain for days, we need a week of steady rain, although they are cautioning that if it’s not enough rain and the lighting slated to come with it could actually worsen things…. and you wonder how much worse can they get, yet you know they can always get worse….we are surrounded by out of control fires, the covid 19 is again hitting us hard in this region, more restrictions for us, hospitals are in code orange and struggling to manage, And a Federal Election, its too much for most to manage, its overload on our body systems. People are tired, stressed, scared, and their health is being effected. I think the long term effects are going to be more than people think.
For me I am emotionally drained, while trying to manage the further lockdowns and shut in living, due to the smoke living in darkness most of the time, and now having to say my goodbyes to my sister in law, which fills me with sadness. The steps that had to be taken to be allowed in to see her and say my goodbyes, was more steps and checks due to covid, and it was confusing, not set up to be easy for people that may be older or have any sort of difficulties. Nonetheless I could not imagine not being able to see her. I can’t imagine the difficulties for all over this last 18 months who couldn’t say goodby to loved ones, so I am grateful that I was able to make the trip on Thursday.
It has been a difficult number of months, trying to focus mostly impossible. My advocating work slowed to a crawl, with the added pressure of beating myself up for not doing as much as I normally do or contributing in the ways I normally do. Admitting that we are again having to admit that once we what we were managing to do and maintain we no longer can. It’s just another of the ever changing and challenging aspects of living with Dementia, but at least now even though its difficult to admit to and even though I end up feeling bad, like I’m letting people down, I do realize that I must ensure my own well being, or taking time away to focus on my well being will not be a temporary thing it will become permanent. The rain has already stopped.

I have booked three days in a small cabin on the waters edge in the northern part of the province for three days at the end of this month, sometimes it can’t be about $$$ all the time, sometimes ones will being trumps the money aspects, the well I shouldn’t really spend the money, I can’t really afford to spend the money, sometimes ones well being trumps all so for me to get out of the smoke, to hopefully enjoy some sunshine, I will likely have to up my vitamin D intake this winter as I definitely did not get adequate sunshine this summer. It will be money well spent and so much more affordable than I could have hoped for at $ 80. per night, I think its a steal, and the best part my little Pheobe gets to go with me, she needs a change of scenery too.

I have and will be focusing on getting through the rest of this year, it’s been such a hard one. So hard actually that I was actually mad at my husband for leaving me to have to manage through life and especially these events like the smoke, heat, fires, pandemic alone. I wasn’t angry for long, more sad knowing that having him here would make life so much better. it does at times make me think about how extremely tired I am from trying to do life alone, and the isolation of the pandemic and then the heat, smoke and fires and now more isolation due to the resurgence of the pandemic has brought it into sharp focus. If you have beloved, cherish them, life is stopped short far to often and having to go it alone, might look great from the other side, but its not, all those insignificant things that we fret over, fight and argue over, we would give anything to be able to still do, so hug your loved one, you never know if today is the day your world gets turned upside down.

I was talking to a friend yesterday who called from the USA, and I treasure our friendship, and we talked about how sometimes we think we just want to fade into the background, not be tied to zooms, meetings, to agendas and just start living our life as our doctors encourage us to do. It’s not that we don’t love our advocacy work, working with various groups and organizations, but sometimes it takes so much of our time we forget to live today, in the present. We forget to go out and do the things we truly enjoy. When is it time to do that? Its a hard thing, we truly love what we do, we love all the people we are connected to, but when you are tied to your computer all the time it takes away from living in the moment. However I believe I have always tried hard to maintain that balance, and get out for my walks, and into nature as much as possible however the circumstance here have stopped me from doing any of those things, and thats what has contributed to my being emotionally drained. So I am focusing solely on getting to the end of 2021, alive and as intact as I can, emotionally, mentally, physically.

I don’t know what comes next, or to what degree, I can only get through one day at a time. Life will not go back to what it was two years ago, something different will unfold, I will embrace it and walk it whatever that path may be.

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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

Misfit


I’m not sure if it is the almost two years of the pandemic and the account the effects of adding the unprecedented heat, then never before seen fires, and smoke, which just created more isolation for me. But somewhere in there I became actually aware that I don’t fit in anywhere. It’s a strange feeling, I tried to explain it to my sister, it’s like everyone has their place, like their community of people, be it family or friends, that circle, that place that feels like home, like you are part of it and the people within and vice versa. I wonder where I am supposed to be where is home for me? I’m searching for that place, I’m searching for that community or my people. Who are they, where is that.Maybe I’m a modern day hobo, who doesn’t have a place, that wherever they are is it, but they drift and never really have that sense of community which is often our friends and family, the greater community we live in. Somehow maybe due to the pandemic, maybe this is one of the effects surfacing from ongoing isolation, I now and for a while now feel like a misfit, like I don’t fit anywhere. Like I can’t or don’t relate or fit in most situations. It is if I’m honest somewhat frightening of a place to be, but as always I’m trying to find the joy in it. Trying to look at the freedom it gives me to go out, one we are thru all that is happening with the pandemic and fires etc, to explore different groups, clubs, organizations, until I find my place, my people. I’m adrift without my people. I used to have a great social network, I don’t have any now. The world seems like a very strange place to me. I’m sure much of what I’m feeling will end up leading me to people who I will fit with, in a place that will be good for me heart and soul, or perhaps I just have to embrace the gypsy in me and just be free.
I am also much more emotional about things and things effect me on a much deeper level, whether it’s things like how the fires are effecting my beloved forests and animals, or the impacts on those I care about, so I feel things on a much deeper level.
I am not sure if it’s the isolation or changes in my dementia or perhaps a combination of the two. I just know that I am in a place I never saw myself in, trying to manage through it all, at times feeling like I’m just tired of trying to manage everything alone, but somehow I do.
At the moment I’m telling myself all I have to do is get through today, that’s what I focus on, I have decided I will not be putting pressure on myself to do or make decisions regarding anything until I get through 2021, whether on a personal level, living arrangements, my advocacy work, I will only be doing what I feel I can manage, when I feel I can.
yesterday was a very productive day for me and it felt good, packing more of the things I want to have ready to go should need be, my essentials I already have in my vehicle, but have some other things ready as well. I may not need them, but we are sitting in the midst of a melting pot at the moment, so a lot of unknowns in a situation that keeps changing moment by moment it seems. I then took all my plants off my deck, they had a rough go with the heat but I had just brought them back to be looking pretty good, but had to remove them from my deck, because if we get evacuated they would become a fire hazard with ash and embers falling, so sadly they are gone, but before I did a had a visit from a butterfly got some lovely photos, they like zinnias, I cried watching it, talked softly to it, and when it was done I carried on dismantling my pretty little deck. Hauled it all too the dump, I have done my part. I spent two hours at the hospital, while they tried to do tests that my specialist wanted on my lungs, but they were not able to complete because the equipment would not calibrate properly, they said the poor air quality in the hospital because of the fires were interfering with the calibration of the equipment. The tests are rescheduled for Sept. Thursday I am going to the coast to say my goodbyes to my sister in law, we have had a lovely and close relationship and Although the trip will be a long day for me, especially since driving will mean detours, alternate highways and possible reroutes due to the fires and as it will be an emotional it will be good to be able to give her one last hug.



This year has been one that is still unfolding, and seen many changes for me, as for many others, I am hoping that my people, my place is revealed. Until then self care, extra rest. We still have 3.5 months of 2021 to get through, I am making my way through it one day at a time.

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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

A Different Kind Of Day

Yesterday morning I woke the smoke in the air very visible, even though I was a seven hour drive away. I busied myself getting my things ready for for heading home today. After a. Shower and relaxing, I was planning to go have a coffee with my sister, when outside with Pheobe that piece of me that my mom taught me to pay attention too kicked in. In a matter of moments my plan changed, my gut instincts were telling me I needed to head for home. I couldn’t pinpoint why, but it was coming through clear and strong. Normally if I am travelling I start out early in the morning, it was already 10 am five hours past my normal start time to travel. I loaded my car, stopped at my sisters momentarily and then headed off.


I knew that the situation at home is what they were telling us would be a catastrophic weekend where the fires are concerned, but Friday, they phoned my specialist wants my tests done Monday morning, I have other medical appointments throughout the week.
I have driven this drive a thousand times, I’ve been driving it since I was 16 years old, but yesterday’s drive was unlike any I have taken over these roads. I wasn’t sure if I would go all the way or part way, I was just going to go by how the day was. When I left Fernie, it was smokey, I was surprised driving how thick the smoke was in different areas, none the less Pheobe and I were enjoying the drive, our first stop was at the the the peaceful Little Rock gardens in the woods to place my memory stones in the memory garden, I made one for my husband and my mom while I was at my nieces. My supplies were limited, but nonetheless I am happy I got to place them in the garden, we spend time in the creek the water so clear, cool and beautiful, I even got Pheobe into the water, and soaked her down, she didn’t even mind, so I think it was a welcomed cool down for her from the heat. A nice walk through the forest and a energizing rest, the air was good there, off we went, and we didn’t have to go far to be in thick smoke again, the Kootenay Pass enveloped by smoke. The traffic was almost non existent, it appeared people were finally heading the orders to stay away from our area. Temperature were varying, a pleasant 25 / 26 Celsius, for the first part of the drive.

The areas where fires have been recently very visible and one area that on my way there, had a lighting storm as I drove through apparently a fire started, you could see the retardant dropped by the planes and the scorched trees along the road side, the retardant was now on the road. The difference in a week. It saddened me to see the fire damage. The temperatures took a steep jump to the 30’s , but with lighter traffic we were able to stop and stretch and have cool off periods in the provincial parks that are normally too busy.

Christina Lake was completely socked in, the lake barely visible, and we were now into the hot temperatures, my air conditioning not working, of course my main concern would be my dogs comfort, my common sense told me I needed to ensure she could stay cool, so I stopped and bought a block of ice, placed it in her car seat with her, it only took her a few minutes to realize this was a welcome addition, so our windows down a hot smokey breeze and a dog cuddled up to a block of ice, we continued on, stopping every hour to stretch. It was such a relaxing drive despite the heat and smoke, it was eerily quiet on our normally extremely busy highways this time of year, so we were able to relax and enjoy. The hours slipped by as did the miles. We stopped in a little town of Beaverdell at a roadside food outlet and enjoyed a piece of pizza each, Pheobe loves pizza, a walk a stretch, water and heading off for the last stretch to home.
The smoke became increasingly thick, as we were headed into the last little stretch the lakes that normally welcome me, we’re not visible, it became so dark, not dark like night but a dark I hadn’t ever seen before, my headlights came on, it was surreal, it felt war torn, Vernon was hidden from view by this thick thick, grey, orange, thick smoke, it was disorientating. I cried as I drove into town seeing my town like this, knowing the next few days could be worse. A silent prayer driving those last few minutes. Getting home everyone in my building was waiting for me, as I drove in I could hear the chants, christine, christine, they were there to welcome me home. They are what makes it hard to change living arrangements. A hot shower, a chat with another friend who lives here who also has younger onset dementia, we talked about how it’s effecting us, and those effects are real, it’s a lot for our brains to try to process, it sends our brain going into high drive. These events, are causing an inability to concentrate, to focus, to control emotions, high anxiety, short fuses, and people without dementia are feeling those things but they are magnified for people with Dementia. We are trying to be supportive of each other through this. I am grateful that she came into my life.
A hot shower and we were off to bed where we slept a good 9 hours, waking up the air is better at the moment, although expected to worsen as the winds pick up today, so the next day or two will be wait and see, embers are falling my car is covered, my tests first thing tomorrow morning, and then wait and see, I am ready to go at a moments notice if I need to, and if my doctor advises that I need to go again I will.
I can’t imagine what all this continuous stress is going to do for people but I am focusing on getting through on day at a time, not apologizing for being emotional and sensitive, but being positive that the other side of this good things will come.
we have the added stress of covid increasing new restrictions, but truthfully that pales in comparison to the stress and uncertainty of the fires. I’m going o repack and add some treasures to my emergency kit, while I’m home.
please stay well, stay safe, be kind, kindness is such a needed gift to provide others.

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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Living well with Dementia Silver Linings

Friday the 13th

Good Morning,
Yesterday was very Smokey here, the heat is on, and sadley our province is feeling the impact of climate change with fires raging and emotions and stress running high. Yesterday I wrote something I’m sharing here, not to cause controversy, but because I along with a lot of others are listening to and seeing everyone pointing fingers at what’s happening in our fire fights. And I am not about to say they are right or wrong, and I understand that people’s emotions and anger has to be directed somewhere.

We have to remember when fires are being fuelled by these conditions, conditions we have not seen before. The people who are working are doing all they can. They don’t want to lose a house or community they too have families and would likely rather be home than spending 14+ hours per day doing all they all the while being at the mercy of Mother Nature, people pointing fingers and trying to place blame help no one, we need to support these working so hard, place blame later if you must, but now is not the time. There is fires storms around the world everyone is scared and tired and stressed beating up those doing the work just creates more stress. People are feeling like no one is doing enough, but there are many communities being impacted, resources are being deployed to various parts of Canada and the world, we ourselves have teams from Australia, Mexico, and clear across this country, but there is also unseen fires burning in other areas of Canada, and globally. This type of work is so extremely dangerous, and unpredictable. Sending people in to risk their lives in these conditions who are not trained is dangerous as well. Years ago they pulled people out of the pubs to go fight fires, many lives were lost in those days due to lack of knowledge of what these fires can do. This year we are seeing fires behaviour we have never seen, making it all the more dangerous and topped with conditions we have never seen. I am sure there will be much learnt and understood. The one thing I do know is people all need to start doing more to get our province and our country healthy again, and forget worrying about the cars on the road creating climate change, each and everyone of us need to look around our homes and property’s and see if we are doing what we can, what are we planting or not planting, what are we consuming and not consuming. Every one of us can make a difference. Also why when we new and we’re told this could be a bad year because of the dry conditions are crews having to spend days removing things that are ignition sources from in the yards of the neighbourhoods they are trying to save. People have to take responsibility that many have not or could not be bothered or whatever the issue to ensure that those things were done. That is the responsibility of each home owner, yet there they are spending countless resources and time doing what should be done each spring. Perhaps it’s time to put together neighbourhood work bees again to ensure neighbourhoods have these things done.
I am deeply saddened by the blame game, I’d rather we all learn and help to ensure things like this have less of a chance of happening. I’m deeply saddened over the loss of communities and history, and lives, I’m deeply saddened that so many are feeling the strain, I think we will all be feeling it for a long time, and with the accumulated stress from the pandemic post traumatic stress is going to hit many and many likely won’t even realize that’s what it is.
This weekend they have said will be “ catastrophic in nature, high temps, high winds, fir behaviour that is very erratic, we are all sitting holding our breath.
It is Friday the 13th a day that many say is bad luck, but I am choosing to believe it is not a bad luck day, but instead a good omen, ( I hope today I may be able to be right, I’m asking the universe for help in this).

So today regardless of if you think someone is to blame, remember on many levels we are all to blame, so let’s try to be kind, to show compassion and understanding, not stand in judgement. We are all feeling the impacts, we are all feeling the stress let’s keep that in mind and let’s also remember, that every time someone is saying negative things whether they are right or wrong it has a terrible impact on those who are actually the boots on the ground risking their lives everyday, they deserve our respect and gratitude whether we think any bureaucrats or departs there in are to blame. And even though you may think it won’t effect the moral of those on the front lines it will and does.
Please be kind, the coming days are going to be tough.

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Advocates Advocating Christine Thelker © 2020 Dementia Event For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

Time for an update

Photo by Brett Sayles on Pexels.com

I left home Sunday morning to a safer place amidst the fires and heat of home, today is Wednesday 2 in the afternoon. The air is clear here the temperatures are much cooler than home although today and the rest of th3 week will be warm for even here. However, a nice breeze, cooler at night ability to sleep with the windows open. On Monday afternoon my body in response to what had been and is still to some degrees with the difference being the smoke and the heat, my body decided to start showing the impact of that stress on my system. Having dinner with my sister I suddenly couldn’t function, complete warning to me from all systems to just stop, so off to bed for almost 12 hours, yesterday was totally low key once again, another twelve hour sleep, a short visit with my sister, a short walk by the river, and then my body says rest, so resting it is. The perfect time to do a catch up with everyone. One doesn’t realize how much strain your system is under during times like this last 5 or 6 weeks. I’m going to share something some shared with us who has been through this it accurately talks to what happens to your body at these times.

A beautiful read about these fires, Krystal Clark wrote:
I was raised in Lee Creek, my babies were born in Kamloops, and most recently I got to spend months on the lake healing my body with some really incredible therapies after years of pain.
I can’t even express how much my heart is with you guys, who are facing alerts and evacuations and everything that comes with a natural disaster like this.
I hope this share helps even one person ❤️

As the fires burn back where we are from, my heart has been heavy for everyone who has been experiencing this terrifying feeling of when nature takes over, and we are left helpless in its wake.

As a mother who was a firewife during our own evacuation 2 years ago, as well as a Shuswap resident during the 2003 firestorm, I want you to know a few things that I learned from our experience and surviving the PTSD that came with it.

Pack for longer than you think you’ll be gone. I grossly underestimated the time we would spend out of our home. Pack the sentimentals, the documents, all of the old laptops and memory cards, the sweatpants (yes, in august. You’re gonna need some comfy clothes for the weeks to come), multiple pairs of shoes and whatever else. Craft supplies and toys for the kids are also a really good idea.

Say goodbye to your freezer and fridge items. Empty it first if you can. Take photos of each room and each appliance if possible. If you have the receipts handy, take them. Try to set yourself up for an easier time when processing possible claims.

Trim back the hedges and put the propane tanks away from the house. Put sprinklers on your roof and around the parameter of your home.

Get used to the smoke. Ours lasted until winter. It took a full year to get the fire completely out. This is a long haul.

There is absolutely nothing like going through an evacuation alert or an order. The days leading up to a possible order while on alert will drain you. It will keep you in a state of fight or flight while you wait for the news, adrenaline will come and go, it will feel surreal, and having emotions during this time is completely normal and okay. You will likely remember key moments for years to come. I clearly remember the moment I looked up at the sky while on the phone with a coworker, and knowing in my core that this would be the day we would go south. Fast forward a few short hours, and I can still vividly see my babies in the backseat of my truck, screaming for their dad who stayed behind to fight the fire, and that fire raging in the back window. I knew I was doing the right thing, but it was intense. It was a lot. And what you’re going through is a lot too. Be gentle with yourself for the next while. You are not overreacting, you are experiencing a natural disaster, and you are going because your life depends on it. It is okay to be overwhelmed.

When you get to your destination, allow yourself the time to recoup and rest. Your body has been through a ton of adrenaline and fear, and your nervous system needs to reset. Don’t fight it. There will be time to get out and get the errands done.

You will pack the weirdest things. Ski boots, one golf club, clothing that hasn’t fit your children since 2013, whatever it is. Or, like one of our friends, you may completely forget your underwear. Bond with other evacuees over these things. In a strange way it really helped a lot of us to have a good laugh.

Call your insurance company when you get settled in your temporary location. Chances are good you’ll have to at least replace appliances, power can fail and most likely will. Our town lost power for a full 3 days before it was restored, and there was a lot of waste. It’s good to contact them to check in on what you’re going to need to document.

Don’t isolate yourself from support. Check in on your family and friends, reach out when it’s too much. The communities that have taken in evacuees often have discounts, events and gathering places for those who are displaced. Lean into their generosity and create some good memories in the middle of it. The city of Grande Prairie was absolutely incredible to us, and I will never forget meeting up with some other first responder and evacuated families to paint mugs and ornaments at Clay and Cupcakes, which has since sadly closed. You are not alone in this, so please lean in on those of us who understand ❤️

I know this will feel impossible, but try to limit your social media exposure to the comments sections in the weeks to come. Trust me on this. I know Fort MacMurray residents can attest to this. The sheer volume of comments about karma for the oil sands, political agendas blown out of proportion and the random trolls who want to see the world burn was a lot to take when it’s your home they’re speaking about. Your adrenal glands will be constantly kicking out the cortisol and other stress hormones as it is, so try to intentionally limit your time on your screens, and try to keep it pertinent to information and bonding with others. Download the apps that give you up to date info on the fire from the experts. Stay informed but also removed as much as possible.

When there is structure loss… grieve.
When there is human loss… grieve.
When there is animal loss… grieve.
You don’t have to be strong all of the time through this.

The biggest thing I leave with you is this:
You. Will. Get. Through. This.
You got out.
You’re alive.
You have your loved ones nearby (or so I hope).
The important stuff is with you.
You will get through this.

Our hearts are with you, we understand and you’re not alone.

bcfires #whitelake #fire #firefighters #Vernon #kamloops #kamloopsfire #shuswap

This was beautiful to receive, and it reaffirmed to me that the emotional, physical and mental fatigue I feel is real. The added strain my body endured during the unprecedented heat wave, being ill just prior, it’s been a tough year and I’m feeling the full impact.
so although it would be nice to say I’m on holidays, I am not I am on necessary reprieve to rest and be somewhere where my body can get out of that fight and flight mode. I am monitoring the situation at home, yesterday was very Smokey again, today it is windy, the fire is still out of control, I will reevaluate each day, that in itself is stressful. This is not likely to be over soon. I am appreciated of the private messages and emails. I am grateful to see family members and that they are appreciative of the fact that I am extremely stressed and tired.
im going to do what I can in and around my advocacy work over this next week, but will be mainly focused on breathing getting my lungs filled with good air, resting and trying to find ways to relax.
I’m ending with a few pictures from my last couple days. Be safe everyone

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Advocates Advocating Christine Thelker © 2020 Dementia For This I Am Grateful Good Grief Living well with Dementia Silver Linings Stress

The Air That I Breathe

Yesterday morning leaving at five am I drove to the East Kootenays, to stay at my nieces for a few days. The decision came when we were given an evacuation alert and knowing that waiting until a full order came would not serve me well. 

My health has been in decline, since June 21 being hit with the never before heat dome, followed by the smoke and fires, too much stress and strain on my heart and lungs, which really is causing harm to my whole system. I likely should have gone a lot sooner, but home is home and we always think tomorrow will be better, but the air quality being so so poor, I needed to give my system a reprieve from it, a compromised system will only manage being compromised for so long before it goes into a full crisis or worse.  I’m monitoring things from a distance know and will make a decision over the next couple days about when it’s ok for me to go home. 

Yesterday’s drive was truly unforgettable, when I left home at five a.m. it was still dark, a few blocks from home driving up the hill past the hospital, it started to rain, it hadn’t been raining at my house, just a light rain. Driving I was thinking I hope it rains the whole time I’m away, I hope it pours down on the fires. An hour later I was out of the rain and within another half hour I was pulling into a rest area to see the sun coming up and to hug a tree.  The air was clear, no smoke, the sky a pretty blue, I walked about with Pheobe just taking I. The fact that I could breathe, without it causing chest pain. The air felt so amazing. 

I drove with all the windows open listening to my music, the air feeling so good, as I drove I practiced taking intentional breaths. About 4 hours into my drive I suddenly realized that the headache that was having me eat extra strength Tylenol daily and effecting my vision it was so bad, suddenly was not nearly as bad, the true impacts of how much my system was being impacted. I had made the right decision for me.
For so many the impacts of the heat and fires was losing their homes, devasting losses, for me I was losing my health, the loss of my already compromised health doesn’t mean my loss was more than theirs, I am and have been heartbroken watching the destruction these fires are doing to people to communities to livestock, to wildlife. I have shed so many tears. I do not know of anyone in my area who is not traumatized be the events that have been unfolding. But for me the impacts on my health become and are much more important than than the possible loss of my home.
Once leaving Christina lake and heading up the blueberry polson pass ( you can tell how old I am I’m not sure they even call it that anymore), it started to rain, not a sprinkle but heavy heavy rain, the kind where your windshield wipers on high speed aren’t enough, where there is so much water running, you can feel your vehicle wanting to hydroplane. I turned my music off and enjoyed listening to the rain pound on my car as I slowly drove along. Driving was slow, then the thunder and lighting started, I was watching eyes peeled expecting the hillside to light up with fire, I have not checked today to see if any started, but I thankfully did not see any. Stopping in Castlegar to fuel up, I stood in the rain, just to feel and my oh my the air was fresh. I just stood there, looking up hoping and praying it would last for days and that it would travel to my area. Another 3/4 of an hour and I was out of it, I saw the blue skies again, then another surprise going over the kootenay pass, a hail storm, huge hail balls, oh what a drive this was turning out to be. The temperature were ranging from 9 Celsius to 18 as the day progressed, the cooling off was also making my body happy, and my headache progressively was dissipating. Coming down the other side of the pass again the blue skies and sunshine appeared and just in time. I wanted to stop for a rest and walk a little with Pheobe, one of my favorite little spots was closed for a long time for a flood that pretty much destroyed it but I was hoping it was reopened. I was thrilled to see it was. It was a beautiful and well cared for by locals spot, that was always so peaceful, it had changed immensely, still good energy ran through it, the floods had created a whole new creek bed, what was there gone, but what was now was beautiful the regrowth of plants and trees and the people who had and do stop had transformed it into a magical place, a healing place, filled with rocks, painted with positive messages, a healing heart area, remembering people who they have lost, it continues to grow.


Walking through it enjoying the smell of the cedar trees, the freshness of the water in the creek, all the positive energy flowing, I gathered rocks at the creek side, I will do a couple special rocks for placement there on my way home. Pheobe to felt it she was suddenly energized, I think the good air was starting to make her feel better as well.

This drive was turning out to be a much needed escape from the stress of fires, from the strain of all the isolation. I’m truly grateful to all my friends, my hot mess group, for it is all of them who encouraged me not to wait, to take of myself. I’m grateful to my niece for opening her home to Pheobe and I so we had a safe place to land, I’m grateful to my sister and her family for all they are doing to ensure I can rest and recoup.
My landlady called me about 7 last night to say she needed access to my place she had to keep all plants and outside of the building wet, it was hot and dry there, when I arrived at my sisters it was pouring rain and last night I feel asleep at my nieces with the window open the fresh rain air coming in, I was feeling a deep sense of gratitude and praying that all this rain moves to my area, although hot and dry is expected.
I will monitor and decide how soon I can or should go home, and be praying everyone there stays safe.